Big News for Childhood Brain Tumour Treatment with support of Tali’s Fund

Rare paediatric tumours known as atypical teratoid rhabdoid tumours (ATRTs) have historically been considered incurable.

Tali’s Fund has helped to support a massive study that was published this week on the cover of the journal Cancer Cell.  A SickKids publication discusses this study and the promising developments that are changing treatment for ATRT.  Below are some excerpts from Science Show & Tell: Study uncovers three subgroups of rare children’s brain cancer:

“While considered a black box to researchers and clinicians, ATRTs are among the most common malignant brain tumours in children less than three years of age. Patients are typically treated with a combination of chemotherapy and radiation, and survival rates are low.”

“…Huang and her team not only found there are three distinct molecular subtypes of ATRTs but also identified promising new therapeutics for patients.”

“…This study uncovered promising drugs that can be incorporated into that treatment of ATRTs, and hopefully replace or reduce doses of harsh conventional drugs. These drugs are not a magic bullet but a new tool in our toolbox that can potentially help lessen treatment side effects, improve survival and make a difference in the lives of patients diagnosed with ATRTs.”

“…For this study alone, we collaborated with colleagues from close to 40 countries from around the world to amass over 200 of these rare tumours, which we only see two to four times a year at SickKids. For this work, Jonathan Torchia, a PhD student in my lab and the first author on the paper, was recently awarded the prestigious 2016 Schweisguth Prize. Without the help of our patient families and global colleagues, this study would have never have happened.”

For more information, please see http://www.sickkids.ca/AboutSickKids/Newsroom/Past-News/2016/Science-Show-Tell-Study-uncovers-subgroups-rare-atrt-children-brain-cancer.html

Predictions and Hopes for Brain Tumour Research Advances in 2016

Experts in the field of neuro-oncology make their predictions and state their hopes for 2016.  Quoted from the National Brain Tumor Society blog:

“In summation, these experts believe that this year we can:

Improve our understanding of brain tumors, particularly at a molecular level – which can lead to new insights about potential treatment strategies;

Transform the way brain tumors are classified, so that doctors can more accurately diagnose patients, which could help guide treatment decisions and predict patients’ response to therapies;

Continue to develop new, potentially more effective and less toxic treatments for patients via the area of targeted (precision) treatments and immunotherapies – many of these are already in clinical trials that will be moving ahead in 2016;

Take better stock of treating patients symptoms and quality of life during treatment and drug development; and

Further our understanding about possible inherited risk factors for developing gliomas.

All of these things are within our reach. And all would benefit the brain tumor community, present and future. They are also all the result of past dedication; hard work; and support from scientific researchers, clinicians, patients, survivors, caregivers, advocates, volunteers, and fundraisers/donors…”

Click below to read the complete article from the National Brain Tumor Society:

READ ARTICLE

Redefining Infant Brain Tumours

The Faculty of Medicine at the University of Toronto just released a news article explaining the results of the recently published study in The Lancet Oncology on ATRT (the type of tumour that Tali had).  Tali's Fund has been instrumental in helping to fund this research.  The study was conducted in the lab of Dr. Annie Huang, Senior Scientist at the Brain Tumour Research Centre at SickKids Hospital. Dr. Huang supervised several students including first author John Torchia, a PhD candidate at the University of Toronto.  Click here to read the article:

Redefining Infant Brain Tumours – Click here to read

Tali's Fund News

$13,000 raised at Energy Karate for Tali's Fund!!

Our 7th annual event at Energy Karate was a success! Heartfelt thank you to Energy Karate for their unwavering support of Tali's Fund.  Thank you to the organizers, Sensei's and volunteers for their help and for making the event enjoyable and meaningful for all.  Thanks to all those who participated in the board breaking event!  Thanks to those who donated items for our raffle, and to those who baked delicious treats for our bake sale!   And many thanks to In Style Activities for providing the cotton candy and popcorn machines, supplies, and personnel!  

Meagan's Walk 2015

Tali's Team recently participated in Meagan's Walk as we do each year.  Meagan's Walk is a 5 km walk that culminates with thousands of participants joining hands to hug the Hospital for Sick Children (SickKids), sending a message of hope and love to those within.  Over 4,000 people participated this year to support paediatric brain tumour research at SickKids.  

The kilometers walked by each participant will be counted towards the 2015 Walk Around the World for Brain Tumours campaign.  This campaign was launched by the International Brain Tumour Alliance (IBTA).  Each year,  people around the world undertake sponsored or unsponsored walks to raise awareness about brain tumours and to symbolically “donate” the mileage covered to the World Walk target of circling the Earth.

The 2014 Walk Around the World for Brain Tumours collected a record total of 519, 057 km, which is equivalent to walking 13 times around the globe at the equator!  Over 38 organizations from around the world held a total of 113 walks, raising awareness about brain tumours as well as valuable research funds.  

UPCOMING EVENT:

ENERGY KARATE 
BOARD BREAKING SEMINAR,  

RAFFLE AND BAKE SALE
MAY 2, 2015

   


For the 7th year in a row, Energy Karate will host a fundraising event with all proceeds going to Tali's Fund. During this year’s event, Energy Karate students, both children and adults, will participate in a board breaking event.  The seminar is open only to members of Energy Karate, but as part of the event we will also hold our
 
ANNUAL RAFFLE AND BAKE SALE

great prizes 

yummy home-made treats
popcorn &
cotton candy




Please stop by anytime between 9:00 and 3:00!  


We will be outside Energy Karate

1101 Rutherford Rd.,
Vaughan, ON L6A 1S2


(in the Starbucks plaza at Rutherford and Thornhill Woods), rain or shine!

IF YOU ARE UNABLE TO ATTEND BUT WOULD LIKE TO SUPPORT THE EVENT BY MAKING AN ONLINE DONATION TO TALI'S FUND, PLEASE CLICK HERE:
DONATE NOW

For more information about Energy Karate, please visit their website www.energykarate.ca

Hope to see you there!


Thank you to InStyle Activities for their support!  



Recent Events:

March 10th: Art Raffle – 4 Women Gallery

A women's networking event was held at the 4 Women Gallery.  Haia Hason lovingly created an exquisite work of art in honour of Tali.  She donated this piece as a raffle prize as part of the evening's events.  $700 was raised for Tali's Fund!  Thank you so much to Haia, Ayala Raiter (Gallery owner) and to the organizers of the evening for their help and support.  To see more of Haia's work, please visit her website at www.artisreallife.com




CARDS FOR SALE:
Cards displaying the beautiful paintings from our recent Kids 4 Kids Art event are now for sale! 
All proceeds will go to Tali’s Fund. 
Package of 6 cards:  $10
Package of 12 cards: $12
Available at the 4 Women Gallery
 7787 Yonge Street, Suite 205, Thornhill, Ontario

Each card displays one of these prints.  Cards are blank on the inside.
Back of the cards

Dec 2014:  Thank you to Arielle Mizrahi and friends who set up a Tali's Fund booth at their high school Rock Your Cause event!  The booth helped raised awareness about Tali's Fund and paediatric brain tumours.  

May 2014:  The Kids 4 Kids Art Fundraiser hosted by the 4 Women Gallery was a fantastic event! Many thanks to the organizers and to all the students for their talent, creativity and time.  The event raised $5000 for Tali's Fund!

Join us May 25th – Kids 4 Kids Art Auction for Tali's Fund

Please join us on Sunday May 25th at 7:00 pm for the Kids 4 Kids Art Auction for Tali's Fund, hosted by 4 Women Gallery in Thornhill.  We have received a stunning array of original student paintings and we can't wait to share them with you!  

If you are unable to attend but would like to make an online donation to support the event, please click on the following link:
http://my.sickkidsdonations.com/PersonalPage.aspx?registrationID=2322302&langPref=en-CA

OUR HOST:

4 Women Gallery
7787 Yonge Street – 2nd floor,   
Suite 205
Yonge & Centre Street,
in the Starbucks plaza
Parking lot is located
at the back of the plaza

http://www.4womengallery.com/
 
For additional information about this event, please contact
event organizer:
Eynat Katz

eynat@sympatico.ca

OUR SPONSORS:

Rutherford Marketplace, Vaughan

Bathurst and Rutherford, Vaughan

Davids Tea Promenade Mall, Thornhill

Starbucks Yonge and Centre St., Thornhill

ANOTHER SUCCESSFUL EVENT!

For the 6th year in a row, Energy Karate hosted an event for Tali’s Fund – the 2014 Friendship Tournament.  Despite the cold and rainy spring weather, the turnout was great and we raised close to $12,000!  We would like to extend our utmost gratitude to Energy Karate for their continued support, as well as to the entire Energy Karate family and Tali’s Fund volunteers for their dedication and caring.  Thanks so much to all the participants and to those who attended our bake sale and raffle.
Looking forward to next year!

Meagan’s Walk – May 10, 2014

As we do every year, Tali’s Team participated in Meagan’s Walk, a 5 km walk that culminates with thousands of participants joining hands to hug the Hospital for Sick Children (SickKids), sending a message of hope and love to those within. 


Deadline extended to May 8th for submissions to 
Kids 4 Kids Art Auction for Tali's Fund:

Due to feedback we received, we have decided to extend the deadline for submissions to May 8th. Also, if you would prefer to use a smaller canvas, we are accepting entries on canvasses 16″x 20″ or larger.  

Your painting can be any type of image… use your imagination and creativity!  

Please see previous blog entry for more details about the Art Auction fundraiser. 
____________________________________________________

IN THE NEWS: Research helps!!!
Israeli researcher makes important brain cancer discovery:
http://nocamels.com/2014/04/israeli-researcher-makes-important-brain-cancer-discovery-after-mother-dies-of-the-disease/