Newly Diagnosed
Adjusting to a New Normal
In this blog post by Kostelyk, several ideas from offering to prepare meals to assisting with note-taking needs are suggested as ways to help close families facing a life-changing diagnosis.
Visit Chaos & ClutterLearn how to educate yourself on your child's diagnosis, treatment options, and expected changes as a result of cancer therapies with this guide by SingleCare.
Visit SingleCareDIPG.org lists several organizations and support groups specific to children and families battling DIPG/DMG.
Visit DIPG.orgThe Pediatric Brain Tumor Consortium lists several organizations dedicated to supporting and raising awareness of pediatric brain tumor care.
Visit PBTCCure The Kids leads caregivers through how a brain cancer diagnosis may impact family dynamics and how they can be addressed.
Visit Cure the KidsChild Life Specialists help children and families cope with illness, diagnosis, or medical procedures. Child Life on Call provides virtual visits with specialists and free parent starter kits.
Visit Childlife On CallA project by the Brain Tumour Foundation of Canada and McGill nursing students, offering digital booklets with coping strategies for siblings of children with brain tumours.
Visit Brain Tumour FoundationSuperSibs provides age-appropriate packages to siblings of childhood cancer patients, offering comfort and encouragement.
Visit SuperSibsA helpful packing list for preparing for hospital stays with infants and young children.
View Packing ListCaring Together offers several resources on understanding the thoughts and feelings of children experiencing serious illnesses, expected changes in family dynamics, as well as how to navigate difficult decisions about schooling and healthcare.
View Resources
Helping Children Understand Their Condition
The National Institutes of Health provide information on how to have discussions with children regarding their condition and what to expect.
Learn MoreUpopolis is a secure online community that allows kids aged 10-18 who are going through medical experiences or life challenges to connect.
Learn MoreThe SuperKids Program strives to educate youth while spreading awareness, with downloadable lesson plans for grades KG - 12.
Learn MoreEducational Films, Books, & Toys
Allow your child to navigate their own health through educational videos, resources, and activities on Tiny Docs.
Learn MoreThe Imaginary Friend Society is a cast of characters appearing in short films designed to explain complicated cancer topics in a simpler way.
Learn MoreThe purpose of the book Kemo Shark written by King is to help children understand the purpose and side-effects of chemotherapy.
Learn MoreI Draw Childhood Cancer was created by Angus Olsen, a Disney trained artist and father. His online platform offers free books that provide an explanation for what a child's body is experiencing.
Learn MoreThis series is about Princess Lily who is sick and travels to an enchanted forest seeking help, meeting new friends with challenges that they face together.
Learn MoreImagine a Rainbow written by Miles and Wong guides the reader through relaxing images and soothing rhymes. This book prompts you to imagine puppies, clouds, rainbows and fields of daisies.
Learn MoreThe Can in Cancer is a book written by Cook and Valentine. It discusses the story of Eli, a child diagnosed with cancer, through several points of view.
Learn MoreThe Miracle Workers is an inspirational story written by Marsh and Collina. It tells the story of a child named Blake in a magical land.
Learn MoreHenry the Brave is a book written by Hutter and Clark. It discusses a boy named Henry who discovers a creature that seems like a friend, but ends up being a cancerasaurus.
Learn MoreAutumn and the Bad Bean is “an empathetic, sympathetic, optimistic look at a child’s life with a rare form of brain cancer” in book form.
Learn MoreThe American Girl Feelings Journal is designed to help children understand their feelings and discover strategies to cope with them.
Learn MoreThe Butterfly Pig specializes in handmade dolls and toy medical accessories designed to empower and facilitate conversations about devices/procedures a child may undergo in a playful way.
Learn MoreThe Cozy Cat is a stuffed toy designed by the American Childhood Cancer Organization for children with cancer. It features a gold ribbon, port, g-tube, hand IV and more!
Learn MoreChemo Duck was created to help children to learn about their cancer treatment by providing printable activities and short clips.
Learn MoreAflac Duck was designed to provide comfort while encouraging curiosity in learning about medical procedures. The duck is equipped with a port, stethoscope, syringe, and wrap as well as feeling cards.
Learn MoreBeeBraveBuddies sells unique stuffed characters and books designed to comfort children through challenging times.
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