Her Spirit, Our Drive.

A brighter future for kids with brain cancers.

Online Support Groups

LLSC (Leukemia & Lymphoma) Advanced Cancer Virtual Support Group

https://www.bloodcancers.ca/form/vsg-registration

For families facing a blood cancer diagnosis dependent upon advanced or palliative care, the LLSC Advanced Cancer Virtual Support Group provides weekly sessions led by a specialized counselor. This program provides the opportunity to gain both emotional support and educational background in the management and progression of advanced cancer. Note that enrollment is contingent upon meeting eligibility requirements.

 

Momcology

https://momcology.org/online-support-groups/

As a child caregiver, join the Momcology online support group to grow meaningful connections with those with similar circumstances. Register through this link or contact them directly through [email protected].

 

WellSpring Parents of Children With Cancer Support Group

https://wellspring.ca/online-programs/programs/all-programs/parents-of-children-with-cancer-support-group/

The WellSpring cancer support program in collaboration with the OPACC provides regular online sessions led by professionals familiar with childhood cancer caregiving. Register through this link or contact them directly through [email protected].

 

OPACC – Ontario Support Group:

OPACC (Ontario Parents Advocating for Children with Cancer) hosts weekly virtual meetings to support childhood cancer parents.

This is a great resource for any parent who needs support and would like to be surrounded by others who fully understand what they are going through.

To learn more about OPACC’s weekly meetings and to get the link, DM or email them at [email protected].

 

A Kids Brain Tumor Cure Foundation:

https://akidsbraintumorcure.org/news-resources/connect-to-support-groups/

A great resource that lists several different online support groups. Some may not be available in both the US and Canada.

 

Smart Patients:

https://www.smartpatients.com/communities/caring-for-a-sick-child

Smart Patients is an online community for patients and their families. It is a space to learn from other patients.  Members of this community share help, advice and information about how to care for their family.

 

Paediatric Brain Tumour Support Group Canada:

https://www.facebook.com/groups/226762034544001/

This is a Facebook support group where parents get support from other brain tumour patients, survivors, parents and caregivers. In this group, you are free to ask and answer questions from other members. The group is a private and reserved for the families dealing a paediatric brain tumour.

 

Facebook Groups and Organizations – specific to particular tumour types:

ATRT:

 

 

ETMR:

 

https://www.facebook.com/groups/2173773389571802

 

PINEOBLASTOMA:

  • Pediatric Pineoblastoma:

https://www.facebook.com/groups/168214616644583

 

DIPG:

 

  • DIPG Talk:

https://www.facebook.com/groups/2373430716051374

 

https://www.facebook.com/groups/dipgsupport

 

  • DIPG Research:

https://www.facebook.com/groups/DIPG.Research

 

  • Practical Advice from Parents for Newly Diagnosed DIPG Families:

Practical Advice from Parents for Newly Diagnosed DIPG Families