Her Spirit, Our Drive.

A brighter future for kids with brain cancers.

Sibling Support

My Sister in Heaven / My Brother in Heaven

Author: S. B. Goldstein

https://www.amazon.ca/dp/B0B46X149C?ref_=cm_sw_r_apin_dp_J7TY4YWGVM4HYE243T6J&peakEvent=5&dealEvent=1&language=en-CA

The series My Sister in Heaven / My Brother in Heaven are dedicated to children who have endured the loss of a sibling. The passing of her beloved daughter Ayelet, of ATRT, inspired the author S.B. Goldstein to write these books.  They were written to encourage open discussion within bereaved families and to bring families closer with a sense of comfort and strength.

 

Sibling Support Project – for Siblings of Children with Brain Tumours:

https://www.braintumour.ca/sibling-support-project/

The Brain Tumour Foundation of Canada partnered with five McGill students in the nursing program to create the Sibling Support Project. This project helps support siblings of children with brain tumours. They created a digital booklet with helpful information, including coping strategies, references and the ways that a sibling going through cancer can take a toll on your child.

 

See the links below for more information:

https://www.siblingsupportproject.com/

https://youtu.be/eZm-49uelFo

 

Click here to download the booklet:

https://www.siblingsupportproject.com/_files/ugd

0d7a55_e7b80d686c614ff18fbce0e4ed20beb6.pdf

 

Upopolis:

https://www.upopolis.com/

Upopolis is a free, fun, and secure online community that connects kids aged 10 to 18 in North America who are going through medical experiences or life challenges.  Upopolis reduces social isolation while educating and empowering youth, including patients, siblings, and bereaved youth.  Upopolis also includes an “island” section (Upopolis Island), offering private groups for youth who are navigating grief, as well as for siblings of youth who are living with a medical condition.

 

In Ontario, OPACC (Ontario Parents Advocating for Children with Cancer) is a Upopolis referral organization.  Click here to register through OPACC:

https://www.surveymonkey.com/r/SVNYPPT

 

SUPERKIDS:

https://www.braintumour.ca/superkids/

 

SUPERKIDS is an educational program that seeks to spread education, awareness, empathy, kindness and understanding. This program is designed to help teachers and parents educate kids and teenagers about brain tumours and how the brain works.

Tiny Superheroes Program:

https://tinysuperheroes.com/

https://youtu.be/a8wAFT1Qc-g

FREE GIFTS
The Tiny Superheroes Program creates and delivers Tiny Superhero capes for extraordinary kids. On their website, you can nominate a person of your choice and apply for them to receive a cape. Even Sidekicks (siblings and close supporters) can be nominated by filling out a form online. TinySuperheroes.com/nominate

 

Club NEGU:

https://negu.org/join/

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Club NEGU provides encouragement and support for families impacted by childhood cancer.

Once you sign up for ClubNEGU, your Courageous Kid and siblings can receive 12-18 monthly boosts of encouragement.

 

This organization was inspired by 12 year-old Jessie Rees, who fought cancer (DIPG) for almost a year, and unfortunately passed away 2012 .  She coined the term “NEGU”, which stands for “Never Ever Give Up”.  Jessie really wanted to find ways to help out, so she created JoyJars! JoyJars are plastic jars that are filled with toys and games suited for the receiver. Fill out a form online to be considered for a JoyJar!

 

Supersibs:

https://www.alexslemonade.org/childhood-cancer/for-families/supersibs

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Supersibs is run by Alex’s Lemonade Stand Foundation.  Their goal is to comfort, encourage, and empower siblings during their family’s battle against childhood cancer. Supersibs sends age appropriate packages to siblings to help them to cope and to provide some encouragement.

 

More info:

 

Comfy Cases:

https://www.comfycases.ca

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Comfy Cases, run by OPAAC (Ontario),  provides custom pillowcases to kids with cancer and their siblings.

 

Chai Lifeline:

https://chailifelinecanada.org/

https://www.chailifeline.org/

FREE GIFTS

 

Chai Lifeline’s mission is to bring joy and hope to children, families and communities impacted by serious illness or loss.  They provide counselling, nourishing meals, recreational events, insurance advocacy, sibling programs and much more! Chai Lifeline is available in both U.S and Canada.

 

Give inKind article:

https://www.giveinkind.com/articles/dont-forget-make-magic-siblings-seriously-ill-kids

 

Children and Youth Grief Network:

https://www.childrenandyouthgriefnetwork.com/