Sibling Support Project – for Siblings of Children with Brain Tumours:
The Brain Tumour Foundation of Canada partnered with five McGill students in the nursing program to create the Sibling Support Project. This project helps support siblings of children with brain tumours. They created a digital booklet with helpful information, including coping strategies, references and the ways that a sibling going through cancer can take a toll on your child.
See links below for more information:
Click here to download the booklet:
Upopolis is a free, fun, and secure online community that connects kids aged 10 to 18 in North America who are going through medical experiences or life challenges. Upopolis reduces social isolation while educating and empowering youth, including patients, siblings, and bereaved youth. Upopolis also includes an “island” section (Upopolis Island), offering private groups for youth who are navigating grief, as well as for siblings of youth who are living with a medical condition.
In Ontario, OPACC (Ontario Parents Advocating for Children with Cancer) is a Upopolis referral organization. Click here to register through OPACC:
SUPERKIDS is an educational program that seeks to spread education, awareness, empathy, kindness and understanding. This program is designed to help teachers and parents educate kids and teenagers about brain tumours and how the brain works.
Tiny Superheroes Program:
The Tiny Superheroes Program creates and delivers Tiny Superhero capes for extraordinary kids. On their website, you can nominate a person of your choice and apply for them to receive a cape. Even Sidekicks (siblings and close supporters) can be nominated by filling out a form online. TinySuperheroes.com/nominate
Club NEGU provides encouragement and support for families impacted by childhood cancer.
Once you sign up for ClubNEGU, your Courageous Kid and siblings can receive 12-18 monthly boosts of encouragement.
This organization was inspired by 12 year-old Jessie Rees, who fought cancer (DIPG) for almost a year, and unfortunately passed away 2012 . She coined the term “NEGU”, which stands for “Never Ever Give Up”. Jessie really wanted to find ways to help out, so she created JoyJars! JoyJars are plastic jars that are filled with toys and games suited for the receiver. Fill out a form online to be considered for a JoyJar!
Supersibs is run by Alex’s Lemonade Stand Foundation. Their goal is to comfort, encourage, and empower siblings during their family’s battle against childhood cancer. Supersibs sends age appropriate packages to siblings to help them to cope and to provide some encouragement.
Comfy Cases, run by OPAAC (Ontario), provides custom pillowcases to kids with cancer and their siblings.
Chai Lifeline’s mission is to bring joy and hope to children, families and communities impacted by serious illness or loss. They provide counselling, nourishing meals, recreational events, insurance advocacy, sibling programs and much more! Chai Lifeline is available in both U.S and Canada.
Give inKind article:
Children and Youth Grief Network: